Lei Wiley-Mydske Autistic Advocate & Founder of the Ed Wiley Autism Acceptance Lending Library to Speak at 2019 Targeting Autism Forum
Lei Wiley-Mydske is an autistic and otherwise neurodivergent adult and disability rights activist. She is the director of the Ed Wiley Autism Acceptance Library in Stanwood, Washington and the Community Outreach Coordinator for Autistic Women & Nonbinary Network. She is a writer and illustrator currently working on a children’s book about autism acceptance featuring the Neurodivergent Narwhals. Lei has spoken at national conferences and in her local community on neurodiversity, collaborative advocacy, creating safe and accessible spaces for autistic people and using satire and humor as a tool to combat systemic ableism. She lives in the beautiful Pacific Northwest with her amazing neurodiverse family.
The topic of Lei’s talk will be Supporting the Autistic Community Through Neurodiversity Libraries. Lei will look at and challenge the ways we talk about autism in our society. Who is dominating the conversations about autism and whose voices should be prioritized and centered? She will explore the ideas of neurodiversity, autistic pride and autistic culture and how to create accessible, inclusive, grassroots community based resources that support and uphold those ideas.
Registration for the Forum is open through April 15th. Send an email here. Include your name, contact information, professional affiliation and a brief statement of what you hope to gain from attending the forum.
Lodging and meals (breakfast and lunch) are provided. Because registration for the forum will probably exceed the number of hotel rooms available, please consider commuting if travel to Dominican University in River Forest, IL, is convenient.
Chantal Sicile-Kira, internationally known, award-winning author, speaker, autism mom and leader in the field of autism adolescence and transition to adulthood, will be a keynote speaker at the 2019 Targeting Autism Forum.
Chantal has over 25 years of experience as a parent and professional on both sides of the Atlantic. Her books are: Autism Spectrum Disorder; A Full Life with Autism (co-authored with her son Jeremy); What is Autism?; Autism Life Skills; Adolescents on the Autism Spectrum.
In past years, Chantal was appointed by the California Senate Select Committee on Autism & Related Disorders to serve as Co-Chair, South Counties Autism Regional Taskforce, and on the Transitional Services & Supports Taskforce of The California Legislative Blue Ribbon Commission on Autism. Chantal and her family have been highlighted in Newsweek, on PBS, NPR, MTV, and Fox, Huntington Post and Psychology Today.
Registration to attend the forum is open until April 25th. If you would like to attend or if you have questions send an email here.
Simply include your name, contact information and a brief statement of what you hope to gain from attending the forum.
Her books are: Autism Spectrum Disorder; A Full Life with Autism
fco-authored with her son f eremy); Wat is Autism?; Autism Life Skills; Adolescents on the
In past years, Chantal was appointed by the California Senate Select Committee on Autism &
Related Disorders to serve as Co-Chair, South Counties Autism Regional Taskforce, and on the
Transitional Services & Supports Taskforce ofThe California Legislative Blue Ribbon
Commission on Autism, Chantal and her family have been highlighted in Newsweelg on PBS,
NP& MTV, and Fox, Huntington Post and Psychologr Today.
Greatly I Dream… Keeping Sight of Our Dreams Even When Daylight Comes
In this at times funny, at times heartbreaking personal account, Chantal describes how she helped Jeremy to make sense of the world around him as a young child with the help of educators and other professionals who shared their vision. Chantal humorously and lovingly wrestles with the trials and tribulations of her family’s successful attempt to change the prognosis given to her son when he was first diagnosed at age three: life in an institution. Some of the treatments and therapies that helped him are discussed, along with what Jeremy had to say about them later in life when he could effectively communicate. Twenty-six years later, Jeremy is living a life close to the dreams and hopes of his teenage self, with needed supports. Along the way, Chantal explores how she developed the grit and resiliency she needed as Jeremy’s mother and strongest advocate. Life-changing gifts are discovered, affirming the family’s belief that being “not like the others” means being different, but not less.
Being Different Turning Childhood Disabilities into Adult Gifts
John Elder Robison will describe how the differences of autism and ADHD can disable us as children even as they confer powerful competitive advantages upon us as adults. Though poignant examples from his own life, Robison will show how traits that crippled him as a child actually facilitated some of his greatest accomplishments as an adult. He will share a new way to look at disability, difference, and giftedness, offering a different paradigm for educators, parents, and neurodiverse people. Anyone who is personally affected by autism, Asperger’s, or ADHD will find this talk illuminating and inspiring.
Registration for the Forum is open – now through April 15th. Send an email here .
Include your name, contact information, professional affiliation and a brief statement of what you hope to gain from attending the forum.
As in past years, lodging and meals are provided. (Since rooms are limited in number, however, if you live in close proximity and can easily travel to Dominican University, please consider commuting to the event.)
The 2019 Targeting Autism Forum will be held on May 16 & 17 in Parmer Hall at Dominican University, River Forest, IL.
We hope that you enjoy the new venue and that holding the forum in the Chicagoland area will be more convenient for many of you. Watch for additional details in the coming weeks.
We look forward to seeing you in May!
On behalf of the Targeting Autism Initiative, the Illinois State Library is querying public libraries to learn about programs and services that increase engagement among residents with physical and/or developmental disabilities. We would like to share your input with the wider library community in hopes that your experiences will be valuable and instructive to other librarians.
Please complete (or forward to the appropriate person) the short survey at the link provided here.
Thanks in advance for your input.
I am writing to express my appreciation and support for the fabulous work being done by the Illinois Office of the Secretary of State and State Librarian, Jesse White; and the Illinois State Library’s Targeting Autism Project. For the past four years, the Illinois State Library has made great strides in helping librarians throughout Illinois and the nation to understand and better serve the needs of the large population of individuals with autism.
As an internationally known consultant, author, speaker and autistic self-advocate, I am passionately committed to helping improve the daily lives of people with autism. My devotion to this cause led me to become the Founder and first Executive Director of GRASP, the largest membership organization in the world comprised of adults on the autism spectrum. I am also a lifelong library user and I can attest to the cultural value of libraries in improving the quality of life within our communities. Clearly, the Targeting Autism project through ongoing training, consultation and various programming initiatives is playing an important role in improving the quality of life for patrons and families impacted by autism. In a prior career as a minor-league diplomat, I heard Queen Noor of Jordan accurately describe internet access as the best measuring stick of poverty we had. I agreed, and starting then, libraries, for me, took on new meaning.
I first became aware of the Targeting Autism Project last year, when I was asked to keynote their 2017 National Forum. I soon learned that Illinois was unique in providing a national platform for engaging community stakeholders with librarians, for the purpose of increasing the role of libraries as resource centers for individuals and families impacted by autism. The outcomes of the annual forums and other educational initiatives coming out of the Targeting Autism project have been both plentiful and valuable. Some of these outcomes have been evidenced by the proliferation of environmental changes made within Illinois library facilities to accommodate the sensory needs of patrons on the autism spectrum. In addition, many libraries have learned how to collaborate with community stakeholders to add resources and programming relevant to this growing population. Finally, many Illinois libraries are making a concerted effort to offer jobs and internships to autistic applicants. Overall, Targeting Autism offers a valuable model for developing inclusive libraries throughout and beyond Illinois. And finally, when one considers its size, Targeting Autism’s relative achievements loom large. I’ve worked closely with the Brooklyn, NY library (and especially their heroic Inclusion Manager, Carrie Banks) and your state’s programs…more than “hold up.”
Kudos to the Illinois Secretary of State and the Illinois State Library for support of the Targeting Autism initiative. The need to continue this effort, however, is ongoing. Social stigma and a lack of knowledge about autism remains a pervasive challenge. The dumb-dumbs are still out there (and often vocal). The development and continuation of programs such as Targeting Autism will elevate libraries to play a leadership role in promoting acceptance and inclusion throughout our neurodiverse society.
SensoryCPL app launch!
Katie Hench, co-founder, Infiniteach
Thanks to critical initiatives like the Targeting Autism program, Illinois libraries are playing a pivotal role in developing autism inclusive communities. I’m excited to share with you the resources and supports that Chicago Public Library has developed to ensure their space is welcoming and inclusive for all on the autism spectrum.
Chicago Public Library, in partnership with autism app developer Infiniteach, recently launched SensoryCPL, an app that supports individuals with autism and their families when visiting the Thomas Hughes Children’s Library in downtown Chicago.
The app includes text and video social narratives, a customizable visual schedule, an emotions chart, and more. It can be used as a pre-visit planning tool or as a resource to help during a visit. Check it out here:
- App Store download: https://itunes.apple.com/us/app/sensorycpl/id1391998511
- Google Play download: https://play.google.com/store/apps/details?id=com.infiniteach.accessibility.chipublib&hl=en_US
Liz McChesney, Director of Children’s Services and Family Engagement shared her thoughts on what the app means to CPL:
We are so excited to roll out the Infiniteach app for guests of the Chicago Public Library. As a public library we strive to reduce barriers, provide a welcoming haven of learning and fun and be a beacon of joy for the people of Chicago. Infiniteach helps us achieve all those goals and we are excited to welcome families with a child on the spectrum through the easy use of the Infiniteach app.
Apps like this can be a great tool to welcome, engage, encourage, and support guests with disabilities within your library. But adopting a new technology initiative can feel daunting, whether you are a small system with a limited budget or a large system with many layers to the approval process.
So what was our process for getting the app launched?
The partnership: Chicago Public Library and Infiniteach partnered together to develop SensoryCPL. Team CPL was responsible for sharing assets, and Infiniteach provided content and technical development.
Timeline: We had a 4 month timeline, and throughout that time, we conferenced every other week to discuss progress and questions. We actually finished up development ahead of schedule – a rarity in the app development world!
Pricing: Rather than building this app as a custom app, which can easily cost 6 figures, CPL’s app joined Infiniteach’s autism accessibility platform. The annual licensing fee is $2700 and, to get started, there was a one-time set-up and development fee that varies based on the level of customization.
The app development process: The first step to developing the app was to assess the physical space and the experience of visiting the library. While talking about the experience, we specifically focused on sensory components, such as bright lights or the maze of getting to the children’s library, as well as behavior expectations, such as using shared materials or what happens if a desired book isn’t available.
After developing the content, we focused on collecting the assets needed to visually share that content in the app. These assets included photos of the space, a floor plan, and CPL branding materials.
Once the content and assets were ready, we began testing. Both teams were able to test the app before it was launched into the app stores. After finding and squashing a few bugs (technical, not live!), the apps were ready to launch.
The launch: The apps officially launched in the App Store and Google Play on August 29. We are currently in what we call the ‘soft launch’ phase, where the app is available to be downloaded for free, but we are selectively sharing it. This allows us to get feedback from key users, check for bugs, and make any updates and improvements before embarking on an official marketing campaign.
We cannot wait to see and hear the impact this app, in conjunction with all of CPL’s accessibility efforts, will have on the families, educators, therapists, and individuals who are part of the developmental disability community.
Please feel free to share any feedback and ideas you have (email Katie at firstname.lastname@example.org), and on behalf of the autism community, thank you to Targeting Autism for helping create inclusive communities.